Twin pregnancy and neonatal care in England: a Tamba report | The Twins and Multiple Births Associations (TAMBA)
This report includes information from neonatal networks for stillbirth rates, neonatal death rates, NICE compliance and neonatal admissions for twins.
Findings revealed that twins were 2.5 times more likely to result in a stillbirth and more than five times more likely to result in a neonatal death, in comparison to singleton pregnancies. The report is being submitted to the national review into neonatal services with a call to highlight where and how care should be delivered to multiple birth babies.
Many parents who have experienced bereavement want to offer feedback to ensure lessons are learned and good practice is shared. This can be instrumental to inform improvements in care.
The Maternity Bereavement Experience Measure (MBEM) questionnaire and supporting resource was created collaboratively by Sands, NHS England and the London Maternity Clinical Network. The questionnaire is designed to seek feedback from bereaved parents where a baby or babies have died during pregnancy or shortly after birth.
Setting: All nine level III perinatal centres (neonatal intensive care units (NICUs) and affiliated obstetrical services) in Switzerland.
Patients: ELGANs with a gestational age (GA) <28 weeks who died between 1 July 2012 and 30 June 2015.
Results: A total of 594 deaths were recorded with 280 (47%) stillbirths and 314 (53%) deaths after live birth. Of the latter, 185 (59%) occurred in the delivery room and 129 (41%) following admission to an NICU. Most liveborn infants dying in the delivery room had a GA ≤24 weeks and died following primary non-intervention. In contrast, NICU deaths occurred following unrestricted life support regardless of GA. End-of-life decision-making and redirection of care were based on medical futility and anticipated poor quality of life in 69% and 28% of patients, respectively. Most infants were extubated before death (87%).
Conclusions: In Switzerland, most deaths among infants born at less than 24 weeks of gestation occurred in the delivery room. In contrast, most deaths of ELGANs with a GA ≥24 weeks were observed following unrestricted provisional intensive care, end-of-life decision-making and redirection of care in the NICU regardless of the degree of immaturity.
NHS England’s National Clinical Director for the Maternity Review and Women’s Health evaluates the Saving Babies’ Lives Care Bundle for reducing stillbirths | NHS England
It has never been safer to give birth in this country, but there is more that we can do and reducing stillbirth continues to be a priority for the NHS.
There are currently around 665,000 babies born in England each year. But there are over 3,000 stillbirths. While the majority of women receive high quality care, there is around a 25 per cent variation in the stillbirth rates across England. This presents us with an opportunity to make improvements.
In March last year a new set of guidance called the Saving Babies’ Lives Care Bundle was launched by the NHS England Maternity Transformation Programme, as part of a drive to halve the rate of stillbirths from 4.7 per thousand to 2.3 per thousand by 2030 – potentially avoiding the tragedy of stillbirth for more than 1,500 families every year.
The package was developed by groups brought together by NHS England, including midwives, obstetricians and representatives from stillbirth charities.
It brings together four elements of care identified by best available evidence and good practice to help reduce stillbirth rates. These include:
Reducing smoking in pregnancy
Risk assessment and surveillance for fetal growth restriction
This leaflet and poster on reduced fetal movement was developed by Tommy’s and NHS England with support from Kicks Count and other charities.
The ‘Feeling your baby move is a sign that they are well’ leaflet was developed by Tommy’s and NHS England with support from other charities.
The leaflet contains clear messaging on reduced fetal movements consistent with national guidelines.
It aims to tackle the myths and untrue messaging that women are likely to experience in pregnancy around this topic, such as:
the baby’s movements slow down in the the third trimester because it runs out of room
if the baby’s has ten movements in a day it is fine
women can’t be checked at the weekend.
This leaflet was developed in partnership with NHS England as part of the Stillbirth Care Bundle. The aim of the leaflet is to raise awareness of the importance of monitoring fetal movements and reporting reduced movements.
Dabrowski, R. Royal College of Midwives. Published online: 16 September 2016
The new edition of Sands’ Pregnancy loss and the death of a baby: guidelines for professionals is now available. The fourth edition, in which there are four new chapters, was officially launched this week. The new chapters are ‘Termination of pregnancy for fetal anomaly or maternal medical conditions’; ‘Labour and birth when a baby has died’; ‘Mental health’; and ‘Receiving and responding to feedback: parent experiences’. The first two are an expansion of a single chapter in the previous edition, the latter two are entirely new.
It is a comprehensive update of the previous 2007 edition and contains vital information for professionals regarding losses at any stage during pregnancy.
Sands resources for professionals are available here
The Royal College of Obstetricians & Gynaecologists has published the first annual report from the Each Baby Counts initiative.
The report identifies that the quality of local investigations into cases of stillbirth, early neonatal death and severe brain injury occurring as a result of incidents during term labour must improve. 27% of the 921 reports examined so far were classed as poor quality. This is an early brief report which has been released as there are clear messages for improvement identifiable from the interim data.